Friday, December 18, 2009
Monday, December 14, 2009
Cowboy and Wills Giveaway
For my friends who know someone with autism, you will love critically acclaimed author, Monica Holloway's, heartwarming chronicle, Cowboy & Wills, of her journey with her family through Wills' autism diagnosis and then the friend that helped pull Wills out of that autism darkness we all know and despise.
If you are a parent of a child with autism, this book needs to be on your must read list. Monica's conversational-style immediately draws you in and because you've been there and are still there in the everyday moments she shares of Wills - it's hopeful, humorous, insightful and validating and at least for me the book has been therapeutic. I'm half way through the book and I prefer it to my evening TiVo (ask my husband that is saying something right there.)
I was lucky enough to receive a copy of Cowboy & Wills from Marni Wandner. She is partnering with Monica on social outreach. Marni has also given me a copy to giveaway to one of my readers. This will be your favorite Christmas gift, I promise!
Here's my giveaway idea. What a copy of Cowboy & Wills for yourself? Leave me a comment on this post before Tuesday, 12/22 at midnight. I'll randomly pick two folks next Tuesday morning to receive books. One of you will get the brand new one that Marni sent me for this giveaway. The another will get a slightly used book that I'll just be finishing up. It will have a few tear spots and maybe a note here and there but overall it will be in great shape.
My ask for the winners is that you include your name in the inside front cover of your book and continue to pass your Cowboy & Wills copy on to your friends and family. Yep, it's that good and it keeps the giveaway going. Let's see how many names we can fill in both books!
Tuesday, December 1, 2009
Dancing Badly all over Kansas City ...for a good cause.
Get your Merry on! The Ugly Christmas Sweater Party is 12/11 benefiting Operation Breakthrough. Lots of food, live music, drinks and Griswald Family-style fun. Have you snagged your tickets yet?
Wednesday, November 11, 2009
Thankful and Grateful
As I sit here passing the night away with my sister, Annette, who is in ICU, I can't help but count my blessings.
I am so thankful that my oldest sister, Maresa, called me Saturday and suggested that I get my booty to St. Louis to see Annette before it was too late.
It was October 29 (just ten days prior) when Annette was admitted to Missouri Baptist (MOBap) in St. Louis for a lung biopsy. It was suppose to be "routine" to check out a breathing issue but her condition worsened dramatically.
A little history: Annette is a healthy, fun-loving genius of a 47 year old. She recently moved from Colorado to St. Louis for her dream job. She had been having issues with breathing at her job in Colorado starting this past spring (reason for the breathing issues in her work environment is for another post.) Suffice it to say, she got more and more sick with respiratory issues, was tired of that and had a fantastic opportunity with a pharma research firm in St. Louise back in August.
Her breathing got progressively worse from September to October. She was diagnosed with Sceloderma lung disease this past Friday. It attacked her lungs because they had been compromised. Her lung capacity went from 77% on 10/28 to 30% on 11/8 - 10 days...this disease is horrifying.
I am so thankful that I flew to St. Louis this Monday to see her. I flew to get here quickly (instead of driving from KC) and I was blessed to have my cousin's husband, Chris, on the same flight. He and his colleague, Tim, drove me to MOBap. Because I took the early flight and got a ride from Chris and Tim, I was able to spend a few hours with Annette before her health took a nose dive from this life-sucking disease.
If I had driven, I would have pulled in to MoBap when the ICU doctors were hooking her up to a ventilator and telling my oldest sister, Maresa, that Annette had no chance of getting off the vent. The man upstairs was looking out for my family - thank you, God!
Anyway, because I got to the hospital around 9a on Monday, we got to pay bills - this was extremely important to Annette - she needed that finished, she was too weak to write the checks, she was adament about me getting her bills caught up (if you know Annette, you know she gives assignments and loves to conduct and you're smiling right now.) I was helpful to her as we got those bills out of the way and I'm very thankful she found peace in that.
I watched her skin go from light blue to dark blue and purple very quickly with my sister, Maresa. Annette was struggling to breath when I got there and gasping for air in a matter of a few hours - even with 2 oxygen masks.
I experienced an amazing MOBap staff take incredible, loving care of Annette before they had to transfer her to ICU. Thank you Beth, Jackie, Tara and everyone on the Cardiovascular Recovery & Progressive Care floor at MOBap. I'm very thankful for all you do in such a passionate, loving way for not only Annette, but each of your patients every day. You are all angels!
Once in ICU, Annette made the decision to be on a ventilator and told the doctor not to put her on a trac (if it comes to that.) I am very thankful that I was here with her before the vent went in and that I know the vent was her decision.
I am amazed that the priest came so very quickly to give Annette the Anointing of the Sick Sacrament before she was vented. He was there in moments, not minutes, from the time of the request. His blessing has brought my family so much peace.
I am thankful that I was with my sister Maresa to take in the news from the ICU doctor that Annette had no chance of coming off the vent. We needed each other to get through that whopper of a newsflash.
It's as if Annette waited to go south until I walked in her hospital room. Annette wanted me to be with my sister, Maresa. Annette is that way, always thinking of others.
The ICU staff brought Annette up from sedation this morning so that her husband who flew in from Colorado could communicate with her this morning. Annette mouthed "I love you!" to Bob and they got to spend a few moments together and she stayed awake long enough to see my husband, John, and my brother, Pete, before the staff had to sedate her again to unconsciousness to keep her stable. I am grateful that this fantastic staff balanced that complicated act of keeping Annette as awake as possible without her being in any pain AND stable for the rest of her family to have some time with her.
There are so many friends and co-workers from all the pharma research firms that have reached out over the last few days with prayers, flowers, love and support and I'm thankful to see how many peoples' lives she touched and how many wonderful friends she has. How very comforting.
And all of my friends and family, those I know in person and my social web friends - I'm grateful for your love and support. You lift me up!
I am overflowing FULL of thankfulness and gratitude...your support, prayers and love are keeping me strong for my family and I am typically a wimp so I know this is all y'all. I can't express how appreciative I am.
I am so thankful that my oldest sister, Maresa, called me Saturday and suggested that I get my booty to St. Louis to see Annette before it was too late.
It was October 29 (just ten days prior) when Annette was admitted to Missouri Baptist (MOBap) in St. Louis for a lung biopsy. It was suppose to be "routine" to check out a breathing issue but her condition worsened dramatically.
A little history: Annette is a healthy, fun-loving genius of a 47 year old. She recently moved from Colorado to St. Louis for her dream job. She had been having issues with breathing at her job in Colorado starting this past spring (reason for the breathing issues in her work environment is for another post.) Suffice it to say, she got more and more sick with respiratory issues, was tired of that and had a fantastic opportunity with a pharma research firm in St. Louise back in August.
Her breathing got progressively worse from September to October. She was diagnosed with Sceloderma lung disease this past Friday. It attacked her lungs because they had been compromised. Her lung capacity went from 77% on 10/28 to 30% on 11/8 - 10 days...this disease is horrifying.
I am so thankful that I flew to St. Louis this Monday to see her. I flew to get here quickly (instead of driving from KC) and I was blessed to have my cousin's husband, Chris, on the same flight. He and his colleague, Tim, drove me to MOBap. Because I took the early flight and got a ride from Chris and Tim, I was able to spend a few hours with Annette before her health took a nose dive from this life-sucking disease.
If I had driven, I would have pulled in to MoBap when the ICU doctors were hooking her up to a ventilator and telling my oldest sister, Maresa, that Annette had no chance of getting off the vent. The man upstairs was looking out for my family - thank you, God!
Anyway, because I got to the hospital around 9a on Monday, we got to pay bills - this was extremely important to Annette - she needed that finished, she was too weak to write the checks, she was adament about me getting her bills caught up (if you know Annette, you know she gives assignments and loves to conduct and you're smiling right now.) I was helpful to her as we got those bills out of the way and I'm very thankful she found peace in that.
I watched her skin go from light blue to dark blue and purple very quickly with my sister, Maresa. Annette was struggling to breath when I got there and gasping for air in a matter of a few hours - even with 2 oxygen masks.
I experienced an amazing MOBap staff take incredible, loving care of Annette before they had to transfer her to ICU. Thank you Beth, Jackie, Tara and everyone on the Cardiovascular Recovery & Progressive Care floor at MOBap. I'm very thankful for all you do in such a passionate, loving way for not only Annette, but each of your patients every day. You are all angels!
Once in ICU, Annette made the decision to be on a ventilator and told the doctor not to put her on a trac (if it comes to that.) I am very thankful that I was here with her before the vent went in and that I know the vent was her decision.
I am amazed that the priest came so very quickly to give Annette the Anointing of the Sick Sacrament before she was vented. He was there in moments, not minutes, from the time of the request. His blessing has brought my family so much peace.
I am thankful that I was with my sister Maresa to take in the news from the ICU doctor that Annette had no chance of coming off the vent. We needed each other to get through that whopper of a newsflash.
It's as if Annette waited to go south until I walked in her hospital room. Annette wanted me to be with my sister, Maresa. Annette is that way, always thinking of others.
The ICU staff brought Annette up from sedation this morning so that her husband who flew in from Colorado could communicate with her this morning. Annette mouthed "I love you!" to Bob and they got to spend a few moments together and she stayed awake long enough to see my husband, John, and my brother, Pete, before the staff had to sedate her again to unconsciousness to keep her stable. I am grateful that this fantastic staff balanced that complicated act of keeping Annette as awake as possible without her being in any pain AND stable for the rest of her family to have some time with her.
There are so many friends and co-workers from all the pharma research firms that have reached out over the last few days with prayers, flowers, love and support and I'm thankful to see how many peoples' lives she touched and how many wonderful friends she has. How very comforting.
And all of my friends and family, those I know in person and my social web friends - I'm grateful for your love and support. You lift me up!
I am overflowing FULL of thankfulness and gratitude...your support, prayers and love are keeping me strong for my family and I am typically a wimp so I know this is all y'all. I can't express how appreciative I am.
Friday, October 16, 2009
#BeatCancer
I'm helping to raise funds to
#beatcancer, by blogging, tweeting
and posting Facebook status
updates.
Click here to join me!
Why this online charity event is very, very personal for me!
Thursday, October 15, 2009
Why The Social Fresh Cruise?
Ah, there are a few reasons I chose to pay to go on the Social Fresh Cruise. It's coming right up - November 12-16. Why am I going?
The Hook
Well I got an email back in May from a close friend that's going. He suggested I go. He knows my husband and thought it would nice for us to get away from our kiddos. He knows us very well :).
He explained that my husband could take in some much deserved R&R while I connect with industry friends, listen lots, share some and learn more. Also, he knew that by November I'd most likely be finishing up my online brand marketing role at Embarq and could use a clean break vacation. He was so right on that point!
Anyway, the initial hook for me was his very personal "here's why you specifically should go" (aka what's in it for me?!) cruise invitation.
Sunny without A Deep Pocket Hit
The cruise takes off from Miami on November 12. It's freaking freezing in Kansas City in mid-November. I'm a Middle Eastern girl trapped in the Midwest with chattering teeth and purple lips for about 3-5 months out of the year. Sunny and 90 is very appealing to me period. Sunny, 90 and inexpensive - well, I'm all over that!
The Back Channel is Dead
When you live, eat, breathe integrated marketing that is mostly done through social tools, sometimes you starve for face-to-face conversations with no back channel. An entire weekend unplugged...actually 4 and then some days - count 'em: leaving Thursday, Friday, Saturday, Sunday, returning Monday - completely unplugged. My mind needs no back channel for 4+ days. Connecting with friends and letting go of the three screen update impulse - this is the most appealing aspect of the cruise for me.
Interested in seeing who else is going? A few of the cruisers are listed here. I think there's still a few cabins available. If you want to go and need a code, let me know.
Subscribe to:
Posts (Atom)
Posts
